What is Zipper Q?

BBQ Competition  |  Public BBQ Tasting  |  Live Music  |  Kids Games & More!

ZipperQ is a family-friendly event that includes a BBQ competition and public tasting. Attendees also experience live music and kids games. Sponsorship is a great way for your company to get exposure in the community, entertain key clients, reward employees and support the International FOP Association which funds research to find a cure for FOP while supporting individuals and their families through education, public awareness and advocacy.

Our Inspiration

Zip continues to grow and shine brighter every year. The onset of the flareups caused by FOP was just about 7 years ago. His neck and spine have been fused. His shoulders are what the call "pinned". This means he has movement, but it is quite limited. He has a "ribbon" of bone on his left bicep leaving his arm in a cocked position when resting. The remaining flares have left a mountain range of bone on his back, but have not limited mobility any further.

We have resumed a life with FOP as a part of us. Sure we can’t do some things, but there are a lot of things we CAN do. I am grateful everyday that we figured out what it was. Can’t solve a problem if you don’t know what the problem is. We can control it to some extent and will do our best to do that. Some things are out of our control and we will live with that too. We have such great support. Family, friends, Doctors are all willing to help and try to learn.


2019 Results

2018 Results

2017 Results